Zuzanka
Until the birth, there was no indication that Zuzanka would have health problems. Unfortunately, she was still in the maternity hospital, when everybody quickly sobered up from joy. The examination showed that she had a heart defect and even a hearing test indicated a possible problem. Zuzanka was sent to cardiology, where she was going afterwards for 3 months. During another examination at the cardio centre in Motol Hospital, the doctor recommended surgery because little Zuzanka had several defects in her heart, which unfortunately did not heal as expected.
When Zuzanka was five months old, she had surgery. The surgery was successful, but there were postoperative complications, during which she had to stay in an artificial coma for seven days. But even after she woke up, she was not saved. Zuzanka was examined by many doctors and the conclusion was unfortunately not positive: eye defect, hearing defect, neurological problems. Because of all these problems, she was sent for genetic testing.
After being discharged from the hospital, Zuzanka started going to physiotherapy and she gradually started exercising, while she was also being checked by many doctors.
It took a year and a half, when after many genetic examinations, Zuzanka was finally diagnosed with a rare genetic disease – Kleefstra syndrome. Due to the rarity, no one is able to say exactly what Zuzanka’s further development will be.
Thanks to physiotherapy, hippo-therapy and various other exercises, which she regularly participates in, Zuzanka is moving forward in small steps, but her journey will still be very difficult.
Currently, Zuzanka is still unable to sit down on her own without help and support, she does not walk, does not speak, has problems with eating and has developed epilepsy. At three years old, Zuzanka is developmentally like a six-month-old baby.
The funds will be used to pay for Zuzanka’s special equipment, which she needs for daily care, rehabilitation stays, hippo-therapy, a special wheelchair, a car seat and other compensatory equipment. Zuzanka will also need a car for regular visits to specialised medical facilities.
Also support
BONA, o.p.s. is an organization that supports people with mental illness on their path to reintegration into mainstream society. We provide social services in housing and employment. As part of our employment, we also have a glass workshop, which is a sheltered workplace. People acquire work skills and habits here, they learn the glass craft. In the workshop we work mainly with tiffany technology, thanks to which trophies are also made for the SEVEN CUP GOLF TOUR.
“In January 2018, Mr. Lubomír Petržela asked us if we would like to participate in the creation of cups for a sports tour. It was a big challenge for us and we tried to make a few suggestions. The gentlemen have chosen from the suggestions and we are now pleased with the nice cooperation on the prizes for golf tournaments, which have an overlap and help by money from tournaments where it is needed. We make a total of 42 cups for the golf tour. It takes us over 4 hours of work to produce one prize. We have not worked on such a big contract for a long time. Prizes are a challenge for us. In addition to the prizes for individual tournaments, we also produce cups for the final awards. We hope that the prizes will also be a pleasure for the winners, who will then take them home and show off their results.”
Lucie Kohoutková
Therapist of a sheltered workplace Glass workshop
